I apologize for not updating the blog for a few days. There has been very little to report other than the problems with Austin's platelet count. Today he is receiving transfusion #31. Those platelets just do not want to come up!!! The doctors order single-donor platelets for him, but due to availability, he usually receives a different blood type than his own. Today he got a bag of AB-, which is compatible to his O+ blood type, but I find his platelet count does not increase as much as it would with an O bag. Anyways, enough about that, and on to the good news....... as of this morning Austin is in STEP-DOWN!! We still have to stay in the isolation unit (no beds in step-down), but do not have to gown up and scrub in anymore. Wait.... it gets better ..... five of Austin's antibiotics have been discontinued (Meropenum, Clindamicin, Ciprofloxacin, Flagyl, and Fluconazole)!!!! The doctors had him covered with a ton of IV antibiotics over the last couple of weeks, and did not want to d/c them until he had engrafted. We couldn't be more thrilled that the day has finally come! The list of medication that Austin is receiving is gradually getting smaller. Even his TPN and lipids are being reduced by 8 hours to try and stimulate his appetite. Oh yeah, I almost forgot, Austin ate a Minigo yogurt yesterday, along with several pieces of watermelon and some Powerade!
Today we plan on going for a little walk down the hall to try and get his legs working. Austin is very weak, and is not stable standing or walking. His muscles have become very weak because of the limited movement he has had. However, I am sure that in next to no time he will be "back on his feet again" (literally)!
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8 comments:
hey guys, good to here. I can't wait to come there, 5 days, yeaaa.
Love you guys
Uncle Richy
I was starting to wonder about him. That's great news on the eating!!!!! Keep up the great work Austin. It's great to see these positive posts about you slowing getting better. Prayer is definitely a powerful thing and you both have been getting tons of it.
What great news...it can only get better from here. You are always in our thoughts and prayers and it is helping. Hope to see yo both soon...LUV YA BOTH! XOXO Dave and Jo
I have such a big smile on my face from reading this post! I am so happy. Way to go Austin!!! And you even ate something. Awsome news. Make sure you strat walking you need to build those muscles so we can dance....88 days to go! XOXOXOXOXOXOXO Angie & Family. Oh & Austin make sure you thank MOM for all the work she put into this blog for you. You are a very lucky boy. Your mom loves you so much and would do anything for you!
Hey there,
Way to go Austin. In no time you will be out and still have some summer left!!! I am so happy for you. And don't worry about your strength. Melissa was in wheelchair mostly everywhere for about 2 weeks, then bam-once she started using those muscles, next thing you know she was rock climbing. Oh, and it takes awhile for the appetite to come back but it does slowly. But, it sounds like you are off to a good start, minigo and watermelon and gaterade. Keep drinking, so your overnight hydration at night when you get out will be shorter. Take CAre, Carolyn Lilly
I love reading these positive entries! I look forward to seeing more of them, you both are doing a great job. It's awesome that you went for a walk, before you know it you'll be running down those halls! Keep the good news coming! Love Sue & Ben
Hi Lindsay and AUSTIN -
What a joy to read those positive comments! Keep it up!! You both and your family have been in our thoughts and prayers LOTS, and we'll keep doing that. GOD IS GOOD - even in bad times. Thanks for the blog, esp. the pics.
Love and prayers from Cathy & Cye in Thunder Bay
Oi, achei teu blog pelo google tá bem interessante gostei desse post. Quando der dá uma passada pelo meu blog, é sobre camisetas personalizadas, mostra passo a passo como criar uma camiseta personalizada bem maneira.(If you speak English can see the version in English of the Camiseta Personalizada. Thanks for the attention, bye). Até mais.
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